News
Our founder and chair, Lesley, meets her stem cell donor
Two years ago, Lesley was given the incredible gift of life when she received a stem cell transplant. After no matches were found in her family or in the UK, the search was widened. Her donor was a complete stranger living in Germany – someone she had never met, but whose decision to donate stem cells ultimately saved her life.
Gary Storrie takes on the Edinburgh Marathon in aid of PNH Scotland
Gary is running in support of his sister, Carmen, who is living with Paroxysmal Nocturnal Haemoglobinuria (PNH). His efforts will help raise vital awareness and support for others affected by this rare condition.
Related Topics
What is PNH?
A helpful guide on Paroxysmal Nocturnal Hemoglobinuria (PNH) including common PNH terminology and symptoms.
Find Out MoreAbout PNH Scotland
PNH Scotland was set up in January 2011 to support patients suffering from the very rare condition PNH.
Find Out MorePatient Stories
These stories share the real experiences of people affected by PNH in Scotland. Explore their first-hand experiences.
Find Out More