PNH Care in Scotland

In Scotland, PNH treatment is based on a shared-care model:

Specialist guidance from the National PNH Service
Day-to-day care provided locally through NHS Scotland

1. Local Haematology Care (NHS Scotland)

If you live in Scotland and are diagnosed or suspected of having PNH, your first point of contact is typically:

Your GP (family doctor): who will refer you to a haematologist (a blood specialist).
Local hospital haematology team: they manage routine care such as blood tests, monitoring, transfusions, and general health issues.

Your local haematologist remains central to your care while working with specialist services as needed.

2. Referral to the PNH National Service (Shared Care)

People living in Scotland are supported through the PNH National Service based in England under an agreement that covers the whole UK. There are PNH National Service Centres at St James’s University Hospital in Leeds and King’s College Hospital in London.

People with PNH in Scotland are generally referred to the Leeds centre which:

manages patients from Scotland, Wales, Northern Ireland, and the rest of the UK outside of London.
advises on the condition, oversees complex aspects of management, and coordinates treatments like complement inhibitors.
runs regular outreach clinics around the UK with the PNH team visiting Monklands every 3 months.
provides an on-call service to provide out-of-hours advice.

3. PNH Specialist Care in Scotland: Monklands PNH Outreach Clinic

Monklands Hospital (Airdrie, NHS Lanarkshire) hosts a PNH outreach clinic where patients from Scotland can be seen closer to home.

These clinics are part of the PNH National Service outreach programme — where specialists from the national service visit to provide assessments and care locally.
Patients typically attend these clinics every 3-6 months for review, treatment planning, and monitoring.

Dr. Lindsay Mitchell is a Consultant Haematologist at Monklands Hospital with a specialist clinical interest that includes PNH. She works within the Lanarkshire haematology service and supports PNH care locally.
Dr. Mitchell collaborates with the PNH National Service (based in Leeds) and the local haematology team to deliver shared care for patients in Scotland. This means routine monitoring, investigations, supportive treatments, and coordination of specialist therapies happen locally under her supervision and with input from national PNH specialists.

PNH Care in Scotland

1. Local Haematology Care (NHS Scotland)

2. Referral to the PNH National Service (Shared Care)

3. PNH Specialist Care in Scotland: Monklands PNH Outreach Clinic

Related Topics

Diagnosis & Monitoring

PNH Treatment

Living With PNH